Resource Library

KidneyFuture's resource library is designed to provide clear, practical, and trustworthy information for patients, families, clinicians, and advocates working to improve kidney health. These materials are created to support understanding, spark meaningful conversations, and help individuals navigate kidney disease and related care with greater confidence.

All resources are free to download and intended for educational purposes. We will continue to expand this library over time, and we welcome suggestions for additional tools or topics that would be helpful to you. If there's a resource you're looking for and don’t see here, please let us know, we’d love to hear from you.

How We Build These Resources

Our resources grow out of real conversations, with parents navigating a new CAKUT diagnosis, and with our founder Vincent Ko's own experience raising a child with kidney differences. Each guide starts with the questions families actually ask us, then gets shaped into something clear enough to read during a hard week and accurate enough to trust.

Our current library focuses on three needs we hear most often: understanding nutrition after a CAKUT diagnosis, helping children process their condition, and giving clinicians a simple way to explain complex kidney anomalies to patients and caregivers. As KidneyFuture grows, we're expanding this library based directly on what families and clinicians tell us they need next.

Nutritional Guides
#1 Parent Resource

A practical resource for healthier, kidney-friendly breakfast choices.

Children's Book
#1 Child Resource

A friendly story introducing young patients to kidney care.

Simple Medical Explainers
#1 Clinician Resource

A simple explainer for clinicians and families on key kidney concepts.

Looking for something else?

We're continually building resources. Let us know what would be helpful for you by submitting the form below, or email us directly at [email protected].

KidneyFuture logo

KidneyFuture is a program of CAKUT Foundation Inc, a patient-led 501(c)(3) nonprofit (EIN: 39-3322233), backed by leading doctors, that provides tools, answers, and a welcoming community for individuals and families living with kidney differences (Congenital Anomalies of the Kidney and Urinary Tract - CAKUT).

(c) 2026. CAKUT Foundation Inc, dba KidneyFuture.

EIN: 39-3322233. 1201 Seven Locks Rd, Ste 360, Rockville, MD 20854. All Rights Reserved.