From Birth to Breakthroughs
We are a patient-powered foundation uniting families, doctors, researchers, and innovators to build a brighter future for those born with kidney disease.
Kidney conditions at birth
Such as one kidney, reflux, blockages, cysts, or small/abnormal kidneys.
These early kidney differences are the #1 cause of kidney disease in people under 30.
Together, we can protect their future.
As a 501(c)(3) nonprofit, KidneyFuture channels every program below toward one mission:
better outcomes for people living with CAKUT.
Education & Awareness
We provide clear, doctor-reviewed resources on CAKUT, including nutritional guides, children's books, and medical explainers, helping families understand a diagnosis that affects 1 in 500 births.
Patient & Family Support
Through our Parent & Patient Council, we connect families navigating CAKUT with a community that understands their journey, reducing the isolation many face at diagnosis.
Research & Advocacy
Backed by leading nephrology specialists and medical advisors, we support research aimed at improving long-term outcomes for the estimated 5 million people worldwide living with CAKUT.
News and Updates
KidneyFuture at the Rare & Genetic Kidney Disease Summit
KidneyFuture's Vincent Ko spoke at the 6th Annual Rare & Genetic Kidney Disease Drug Development Summit in Boston, making the case for runnable CAKUT trials. ...more
News and Updates
September 03, 2026•1 min read
KidneyFuture Convenes New Effort to Advance Kidney Disease Research
KidneyFuture convenes the TRACK Consortium, a partnership with the FDA, NIH, and researchers worldwide working to better understand congenital kidney disease and bring forward new therapies. ...more
News and Updates
July 16, 2026•1 min read
KidneyFuture Convenes Landmark Summit to Move Kidney Disease Treatments Forward
In April, KidneyFuture convened a landmark summit at the FDA campus, bringing together leading researchers, doctors, clinicians, and regulators to advance treatments for congenital kidney disease. ...more
News and Updates
July 16, 2026•1 min read
For Families Like Yours
Nutritional Guides
#1 Parent Resource
Realistic, kidney-friendly nutrition for all ages. From smart swaps to easy, follow-along tutorials. Simple, realistic support for everyday kidney care.
Children's Books
In development
Exclusive resources, including our educational book and symbolic necklace, helping kids and adults build community.
Simple Medical Explainers
#1 Clinician Resource
Expert-led resources, from clear CAKUT medical explanations to live and recorded webinars with top specialists.
Voices of the Community
Dr. David Hains
Riley Children's Hospital | Indiana University
"Through collaboration, we can transform the future & outcomes for kids with CAKUT."
Melissa Crimmins
Parent & Patient Council (PPC)
"Every year I search for a foundation for my daughter. I’m so happy it is finally here."
Vincent Ko
Executive Director, KidneyFuture
"I see a future where kids born with kidney disease have better resources & therapies."
Join the KidneyFuture community
Stay connected and help shape what matters most for patients, families, and the kidney community.
KidneyFuture is an official program of CAKUT Foundation Inc., a registered 501(c)(3) tax-exempt nonprofit organization (EIN: 39-3322233). We are dedicated to uniting families, clinicians, and researchers to transform outcomes for those born with kidney disease.
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Contact us
CAKUT Foundation Inc, dba KidneyFuture
1201 Seven Locks Rd, Ste 360, Rockville, MD 20854
Phone: +1 202-630-0043
Email: [email protected]
(c) 2026. CAKUT Foundation Inc. All Rights Reserved.