From Birth to Breakthroughs

We are a patient-powered foundation uniting families, doctors, researchers, and innovators to build a brighter future for those born with kidney disease.

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About Us

Kidney conditions at birth

Such as one kidney, reflux, blockages, cysts, or small/abnormal kidneys.

These early kidney differences are the #1 cause of kidney disease in people under 30.

Together, we can protect their future.

Understand CAKUT Impact

Get Involved

As a 501(c)(3) nonprofit, KidneyFuture channels every program below toward one mission:

better outcomes for people living with CAKUT.

Education & Awareness

We provide clear, doctor-reviewed resources on CAKUT, including nutritional guides, children's books, and medical explainers, helping families understand a diagnosis that affects 1 in 500 births.

Patient & Family Support

Through our Parent & Patient Council, we connect families navigating CAKUT with a community that understands their journey, reducing the isolation many face at diagnosis.

Research & Advocacy

Backed by leading nephrology specialists and medical advisors, we support research aimed at improving long-term outcomes for the estimated 5 million people worldwide living with CAKUT.

For Families Like Yours

Nutritional Guides
#1 Parent Resource

Realistic, kidney-friendly nutrition for all ages. From smart swaps to easy, follow-along tutorials. Simple, realistic support for everyday kidney care.

Children's Books
#1 Child Resource

Exclusive resources, including our educational book and symbolic necklace, helping kids and adults build community.

Simple Medical Explainers
#1 Clinician Resource

Expert-led resources, from clear CAKUT medical explanations to live and recorded webinars with top specialists.

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Voices of the Community

Dr. David Hains

Riley Children's Hospital | Indiana University

"Through collaboration, we can transform the future & outcomes for kids with CAKUT."

Meet our Medical Advisors

Melissa Crimmins

Parent & Patient Council (PPC)

"Every year I search for a foundation for my daughter. I’m so happy it is finally here."

Get Involved as a Parent

Vincent Ko

Executive Director, KidneyFuture

"I see a future where kids born with kidney disease have better resources & therapies."

Letter from our Founder

Join the KidneyFuture community

Stay connected and help shape what matters most for patients, families, and the kidney community.

KidneyFuture is a program of CAKUT Foundation Inc, a patient-led 501(c)(3) nonprofit (EIN: 39-3322233), backed by leading doctors, that provides tools, answers, and a welcoming community for individuals and families living with kidney differences (Congenital Anomalies of the Kidney and Urinary Tract - CAKUT).