Who We Are
KidneyFuture brings together the people closest to the problem and closest to the solution: patients and families living with kidney conditions from birth, alongside clinicians, researchers, and advocates working to improve outcomes.
Our Mission
The KidneyFuture works to improve the lives of children and families affected by CAKUT through:
Education: Making complex kidney topics accessible to parents, caregivers, and patients.
Empowerment: Connecting families so they can learn, get involved, and advocate for better outcomes.
Research: Moving research forward to improve care today and enable future therapies for patients.
Collaboration: Bringing together patients, clinicians, researchers, and innovators to advance solutions.
All of our resources and programs are free for families. We believe informed, connected communities can change the future of kidney care.
Medical Advisory Committee
Dr. Brian Becknell
Nationwide Children’s Hospital
Ohio State University
Dr. David Hains
Riley Children’s Hospital
Indiana University
Dr. Louise Oni
Alder Hey Children’s
University of Liverpool & UCL
Dr. Michelle Denburg
Children’s Hospital of Philadelphia
University of Pennsylvania
Dr. Rik Westland
Emma Children’s Hospital
Amsterdam University Medical Center
More Clinicians Coming Soon
Emma Children’s Hospital
Amsterdam University Medical Center
Scientific Advisory Committee
Dr. Jennifer Charlton
UVA Health
University of Virginia
Dr. Louise Oni
Alder Hey Children’s
University of Liverpool & UCL
Dr. Simone Sanna-Cherchi
NewYork-Presbyterian Hospital
Columbia University
Dr. Tarak Srivastava
Children’s Mercy
UMKC School of Medicine
Parent and Patient Council
Anne Rohall-Andrade
Director of Public Policy & Patient Advocate | American Kidney Fund
Jimmy Einsiedler
Parent Advocate, Kidney Community
Associate at The Pew Charitable Trusts
Melissa Crimmins
Patient & Parent Council Member
Boston Children’s Hospital
Mary Sweeney
Patient & Parent Council Member
Boston Children’s Hospital
More Patient Voices Coming Soon
Patient & Parent Council Member
Boston Children’s Hospital
Mary Sweeney
Nurse Practitioner
Medical Officer Recruiter @ US Navy
KidneyFuture Team
Vincent Ko
Executive Director
Katrina Mendoza
Operations Manager
Soham Desai
Medical Research Fellow
Madison Martin
Community Research Fellow
Leighton Borgmann
Strategy Research Fellow
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A Mission Born from Personal Experience
A Message from Our Founder
I had a turning point when I realized that we couldn't just wait and watch while CAKUT progressed. Like many of you, our family faced the isolation and uncertainty of raising a child with kidney differences. KidneyFuture was founded to bridge the gap between patient needs and cutting-edge research. We are here to champion proactive kidney care, funding the advancements that will ensure a healthier future for all children and adults living with CAKUT.
– Vincent Ko
Our Legal Status
KidneyFuture is a program of CAKUT Foundation Inc, a 501(c)(3) tax-exempt nonprofit organization recognized by the Internal Revenue Service (EIN: 39-3322233). CAKUT Foundation Inc was granted federal tax-exempt status effective July 7, 2025, and is classified as a public charity under IRC Section 509(a)(2). Donations to KidneyFuture are tax-deductible to the extent allowed by law.
Our organization is based in Rockville, Maryland, and operates with the guidance of medical advisors, researchers, and patient families to fulfill our mission of improving outcomes for those affected by Congenital Anomalies of the Kidney and Urinary Tract (CAKUT).
KidneyFuture is a program of CAKUT Foundation Inc, a patient-led 501(c)(3) nonprofit (EIN: 39-3322233), backed by leading doctors, that provides tools, answers, and a welcoming community for individuals and families living with kidney differences (Congenital Anomalies of the Kidney and Urinary Tract - CAKUT).
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© 2026. CAKUT Foundation Inc, dba KidneyFuture.
EIN: 39-3322233. 1201 Seven Locks Rd, Ste 360, Rockville, MD 20854. All Rights Reserved.
© KidneyFuture. 2026. All Rights Reserved.