Children's Book

A growing collection of child-friendly stories designed to help kids and families understand kidney conditions with clarity and hope.

The Story Behind the Story

The Adventures of Henley Bowman & Dr. Neph grew out of a simple, hard moment many parents in our community know well, trying to explain a kidney diagnosis to a child in a way that feels reassuring instead of scary. Vincent Ko, KidneyFuture's founder, wrote the first draft after searching for a children's book about kidney differences for his own daughter and finding nothing that fit. The story follows Henley, a kid navigating a kidney condition, and Dr. Neph, a friendly guide who helps make sense of what's happening inside his body, turning an unfamiliar diagnosis into something a child can understand and even feel a little brave about.

We're finishing illustrations and working with our Parent & Patient Council to make sure the story genuinely resonates with families living this experience before it's released.

Cover of The Adventures of Henley Bowman and Dr. Neph, showing Henley and Dr. Neph standing together in front of a city skyline

The cover of The Adventures of Henley Bowman & Dr. Neph. The interior illustrations are still in progress, and we are reading the story with our Parent and Patient Council before it goes to print.

Families on the Council see the book first and help shape the stories that follow it.

Join the Parent & Patient Council

What Comes After Henley

Once the first book is out, we plan to expand into additional stories and a companion activity guide, shaped by feedback from the families who read it first. If you'd like to help shape what comes next, join our Parent & Patient Council.

Still looking for something else?

Visit the Resource Library or email us at [email protected].

KidneyFuture logo

KidneyFuture is an official program of CAKUT Foundation Inc., a registered 501(c)(3) tax-exempt nonprofit organization (EIN: 39-3322233). We are dedicated to uniting families, clinicians, and researchers to transform outcomes for those born with kidney disease.

The information on this site is for general educational purposes only and is not medical advice. Always seek the advice of your physician or another qualified health provider with any questions about a medical condition.

Contact us

CAKUT Foundation Inc. (dba KidneyFuture)

1201 Seven Locks Rd, Ste 360, Rockville, MD 20854

Phone: +1 202-630-0043
Email: [email protected]

(c) 2026. CAKUT Foundation Inc. All Rights Reserved.

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