Share Your Story

Your experience can encourage others and help raise awareness about congenital kidney conditions. Whether you’re a patient, parent, or caregiver—your story matters.

Enter your name and email, and share a brief message if you’d like. Our team may follow up with you for details. You can return to the Get Involved page anytime to explore more ways to help.

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KidneyFuture is a program of CAKUT Foundation Inc, a patient-led 501(c)(3) nonprofit (EIN: 39-3322233), backed by leading doctors, that provides tools, answers, and a welcoming community for individuals and families living with kidney differences (Congenital Anomalies of the Kidney and Urinary Tract - CAKUT).

(c) 2026. CAKUT Foundation Inc, dba KidneyFuture.

EIN: 39-3322233. 1201 Seven Locks Rd, Ste 360, Rockville, MD 20854. All Rights Reserved.