From Birth to Breakthroughs
We are a patient-powered foundation uniting families, doctors, researchers, and innovators to build a brighter future for those born with kidney disease.
Kidney conditions at birth
Such as one kidney, reflux, blockages, cysts, or small/abnormal kidneys.
These early kidney differences are the #1 cause of kidney disease in people under 30.
Together, we can protect their future.
For Families Like Yours
Nutritional Guides
#1 Parent Resource
Realistic, kidney-friendly nutrition for all ages. From smart swaps to easy, follow-along tutorials. Simple, realistic support for everyday kidney care.
Children's Books
#1 Child Resource
Exclusive resources, including our educational book and symbolic necklace, helping kids and adults build community.
Simple Medical Explainers
#1 Clinician Resource
Expert-led resources, from clear CAKUT medical explanations to live and recorded webinars with top specialists.
Voices of the Community
Dr. David Hains
Riley Children’s Hospital | Indiana University
“Through collaboration, we can transform the future & outcomes for kids with CAKUT.”
Melissa Crimmins
Parent & Patient Council (PPC)
“Every year I search for a foundation for my daughter. I’m so happy it is finally here.”
Vincent Ko
Executive Director, KidneyFuture
“I see a future where kids born with kidney disease have better resources & therapies.”
Driving Breakthroughs & Support for Children with Kidney Disease
KidneyFuture is committed to delivering proactive solutions and dedicated support for the CAKUT community. We focus on empowering patients and families by funding critical research, providing comprehensive resources, and creating a supportive network backed by the world's leading nephrology specialists.
#1
Cause of CKD, Age 30
1 in 500
Births is CAKUT
5 Million
Estimated Worldwide with CAKUT
A Mission Born from Personal Experience
A Message from Our Founder
I had a turning point when I realized that we couldn't just wait and watch while CAKUT progressed. Like many of you, our family faced the isolation and uncertainty of raising a child with kidney differences. KidneyFuture was founded to bridge the gap between patient needs and cutting-edge research. We are here to champion proactive kidney care, funding the advancements that will ensure a healthier future for all children and adults living with CAKUT.
– Vincent Ko
Voices of the Community
Dr. David Hains
Chief, Pediatric Nephrology, Riley Children’s;
KidneyFuture Advisory Board
Melissa Crimmins
Patient and Family Advisory Council
“Every year I search for a foundation for my daughter. I’m so happy it is finally here.”
Vincent Ko
Founder, KidneyFuture
“I see a future where kids born with kidney disease have better resources & therapies.”
Join the KidneyFuture community
Stay connected and help shape what matters most for patients, families, and the kidney community.
Join the KidneyFuture Community.
Get updates on research, events, and resources for families.
Have a question? We’re here to help.
Tell us what you need to understand —
research, diagnosis, treatment guidance, family support, etc.
KidneyFuture is a patient-led nonprofit, backed by leading doctors, that provides tools, answers, and a welcoming community for individuals and families living with kidney differences (Congenital Anomalies of the Kidney and Urinary Tract - CAKUT).
© KidneyFuture. 2026. All Rights Reserved.